i think my baby has down syndrome
Posted by in Jan, 2021
We’re on our way’. “Having Henry brought our lives into a whole new social network - not just the Down’s Syndrome community but a much wider special needs one. Ellie’s sister’s concerns have thankfully proved baseless and she knows now that her shock and upset was purely down to a lack of knowledge of the condition and assumptions from years gone by. There are three major types of Down syndrome. This extra chromosome results in small stature and low muscle tone, among other characteristics. I told them we’d had some really sad news, that their tenth grandchild had Down’s. Why I Terminated My Pregnancy After Learning My Baby Had Down Syndrome. Ellie, 35, an events organiser living in Kingston, London, was so taken aback by the hurtful outburst, she was reduced to tears. We’re a rock solid team.”. About one baby in a thousand is born with Down's syndrome. “Henry has brought people into my life that have truly become some of my best friends – people who not only understand some of the difficulties we face and challenges we deal with but who ultimately, whether it’s because of shared experiences or not, have the same outlook on life as us, and for that we feel so blessed.”. Next thing I knew, my sweet baby was in my arms and I had so many emotions; and as soon as I looked down, I saw it. I looked down, and to my surprise it was a girl! Say when you're 40, you have a fairly high chance of having a baby with down syndrome. “On a weekly basis I get asked by someone ‘did you know?’. In this video I will be discussing the possibility that one of my twins has Down Syndrome. There is a genetic factor, of course. They were showing understanding and compassion for my sadness and grief. Read full article. He goes to a local primary school in Kingston, where he’s learning to read alongside the rest of his peers. “I, on the other hand, lay in my hospital bed all night, awake, staring at Henry, with the same sentence going through my head. I was offered blood work to see if our daughter had Down syndrome. Nothing done before or during pregnancy can cause Down’s syndrome. HadTo. "Surely more accurate information can only be a good thing. The older you get, the more likely you are to have a child with down syndrome. So he was premature. There are things which are harder for him, and for us and there are times when I’ve felt worried about him and his future. She spoke to NetDoctor about what it … A blood test looks for what doctors call “markers,” meaning proteins, hormones, or other substances that could be a sign of Down syndrome. So I just quite calling her. Henry is a typical four-year-old, who loves pirates, swimming and Legoland. Just an hour after his birth, Ellie recounts the doctor taking him away to do some heart checks but when he returned, he had some very different news. A newborn baby with Down syndrome often has physical features the attending physician will most likely recognize in the delivery room. My son with severe LD's has definitely changed life for the better for our family although I suspect people looking in find that hard to believe as he is so far from society's idea of normal. This casual but cruel remark was triggered by little Henry having Down’s Syndrome. I rang my parents. February 19, 2015, 2:00 AM. “Some heart anomalies were picked up at our 20-week scan so we were having regular checks to keep an eye on them,” says Ellie. Okay. As of yet we do not know what causes the presence of an extra chromosome 21. "The Sun", "Sun", "Sun Online" are registered trademarks or trade names of News Group Newspapers Limited. Down syndrome, to me, is part of who my daughter is. Reply. They left and my husband broke down. From Karyn, describing the relationships between her four children, including the youngest who has Down syndrome: My daughter with Down syndrome is now 5, She has siblings aged 12, 14 and 21. “The next few days passed in an extremely emotional blur. I’m 22 and just moved in with my boyfriend and it has finally set in that we are going to be parents. I'd say it's a unique and wonderful experience being a parent of a child with Down syndrome for many reasons. I'm 21, hes almost 23, were planning to start trying next year so I would be almost 23 when I have the baby. Sophie’s husband didn’t want her to have an abortion but she was quick to try and change his mind by pointing out all the problems with children with the condition. Reply. But it's mostly determined by age. ‘My son has Down’s Syndrome’. I know that's a terrible thing to say. Receiving the diagnosis of Down Syndrome can be life-altering. The condition is produced by the presence of an extra copy of chromosome 21 in a baby's cells. We always are cheering Silvia for everything – and her smile is like a great prize for us. There is no way of predicting whether a person is more or less likely to make an egg or sperm with 24 chromosomes. While Ellie and Tom try to take each year at a time, they often daydream about what Henry’s future may hold. I got a phone call from my doctor last week that my baby has a 1 in 85 chance of having Down Syndrome. He had stopped feeding, still hadn’t done his first poo, had turned jaundiced and started vomiting. Without even being aware, our family priorities have shifted and we are so less concerned about the ultimately insignificant things in life. Look at him. Today we found out that our baby has Down’s syndrome and I’m absolutely heartbroken. I would have explained to him that his knowledge and understanding of DS was extremely outdated and completely unjustified. Down syndrome, also known as trisomy 21, happens when a baby has an extra copy of chromosome 21 in some or all of his cells. But the blood test I had a 18 weeks came back great. We disagree. Shocked! Theres a chance I am not really as far as they think & the test could be wrong but Im so scared and upset what am i in for I need support :(. Even if my baby has fatal abnormalities I will keep her or him until God decides to take my baby away. Upon hearing the news, you may feel nervous, frustrated, hopeless. My family on the other hand thinks that people with down syndrome are less worthy of life and are weirdos to be looked upon. These require surgery, which may be done soon after birth or when the baby is … Our early weeks and months were helped so much by our local parent-run group 21&Co. The first thing I asked when I heard her cries, was whether or not she had Down’s Syndrome. Yes it's more challenging but it's also better. These feelings are all normal. And how actually, even if the future did have difficulties, we'd cope, because we love him! My baby had Down syndrome, and at 3 days old she was found to be blind from the cataracts that covered both of her eyes. Im pregnant w/#1 & found out my baby has down syndrome. I had an ultrasound at 22 weeks and my baby boy has a thick neck. She writes, “Eight weeks on, we were still so blissfully happy that we hadn’t yet discussed having a CVS or amnio. My younger sister has Down's Syndrome and I remember asking my Mum what I should say to a friend who had just had a baby with Down's Syndrome and she said, "Say CONGRATULATIONS on the birth of your beautiful baby, just like you would to any of your friends! People with Down syndrome have an extra chromosome that impacts how a person looks and their ability to think, learn, and reason. Well I can't think … So 2 kids out of 100 may have Downs. Put it in a percentage. That if my baby is screened to have down syndrome I should abort him or her. This made me cry! Trying to get the tools together to help us start our new life. Friends and family say he charms everyone he meets. After some discussion, I declined the bloodwork. She was scared for us, for him and so fearful of what the future held.”, She and the rest of Ellie’s siblings sat their own children down to explain about their new cousin Henry, showing them pictures of other children with Down’s Syndrome and talking them through some basic facts. Ellie and Tom’s families’ reaction to Henry’s condition were a great source of strength to them during this heart-wrenching time. Mortified mum stumbles onto son’s homeschooling video lesson NAKED, I’m 19 & my parents track me, read my emails & control my bank account, Bloke’s 'lockdown shop' sparks controversy as trolls rage over long receipt, Mrs Hinch's husband Jamie is unrecognisable in resurfaced reality TV show clip, ©News Group Newspapers Limited in England No. After all, children with Down’s Syndrome have more in common with all other children than differences. I think my baby has Down's syndrome Chat to other parents-to-be about how best to prepare for your new arrival. It is not our right to kill our baby because he or she is less perfect in any ways. Flag optical illusion shows exactly how colour blindness works…so what do YOU see? “I don’t know why but I felt really in control, really strong. A nurse took my hand; the doctor said: 'Nathan isn't going to die, but he's a Mongol - he has Down's syndrome.' Don’t worry. 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